Inês Alves

Graduated in Veterinary Medicine but working as Patient expert, scientific advisor and consultant in orphan drugs since 2015.

President of the board of ANDO Portugal, the National Association for Skeletal Dysplasias, supporting all patients with skeletal dysplasias and musculoskeletal disorders.

Patient representative and steering committee member at the Rare Bone Disorders European reference network, ERN BOND.

EUPATI Fellow, and Vice-President of EUPATI Portugal.

Member of the ad hoc organizing group of the Rare Bone multistakeholder forum.

Founder and author of "Beyond Achondroplasia".